The Ethics Of Medical Data Donation

The Ethics Of Medical Data Donation PDF Book Details:
Author: Jenny Krutzinna
Publisher: Springer
ISBN: 9783030043629
Size: 64.18 MB
Format: PDF, ePub, Mobi
Category : Medical
Languages : en
Pages : 150
View: 6264

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The Ethics Of Medical Data Donation PDF

by Jenny Krutzinna, The Ethics Of Medical Data Donation Books available in PDF, EPUB, Mobi Format. Download The Ethics Of Medical Data Donation books, This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.


The Ethics Of Medical Data Donation

The Ethics of Medical Data Donation PDF Book Details:
Author: Jenny Krutzinna
Publisher: Springer
ISBN: 3030043630
Size: 10.38 MB
Format: PDF, Docs
Category : Medical
Languages : en
Pages : 198
View: 2042

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The Ethics Of Medical Data Donation PDF

by Jenny Krutzinna, The Ethics Of Medical Data Donation Books available in PDF, EPUB, Mobi Format. Download The Ethics Of Medical Data Donation books, This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.


The Ethics Of Medical Data Donation

The Ethics of Medical Data Donation PDF Book Details:
Author: Luciano Floridi
Publisher:
ISBN: 9781013273506
Size: 23.99 MB
Format: PDF, Docs
Category : Medical
Languages : en
Pages : 198
View: 5864

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The Ethics Of Medical Data Donation PDF

by Luciano Floridi, The Ethics Of Medical Data Donation Books available in PDF, EPUB, Mobi Format. Download The Ethics Of Medical Data Donation books, This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one's own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes. This work was published by Saint Philip Street Press pursuant to a Creative Commons license permitting commercial use. All rights not granted by the work's license are retained by the author or authors.


Die Zukunft Der Medizin

Die Zukunft der Medizin PDF Book Details:
Author: Prof. Dr. med. Erwin Böttinger
Publisher: MWV
ISBN: 3954663988
Size: 80.32 MB
Format: PDF, Docs
Category : Medical
Languages : de
Pages : 428
View: 5081

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Die Zukunft Der Medizin PDF

by Prof. Dr. med. Erwin Böttinger, Die Zukunft Der Medizin Books available in PDF, EPUB, Mobi Format. Download Die Zukunft Der Medizin books, Die Medizin im 21. Jahrhundert wird sich so schnell verändern wie nie zuvor – und mit ihr das Gesundheitswesen. Bahnbrechende Entwicklungen in Forschung und Digitalisierung werden die Auswertung und Nutzung riesiger Datenmengen in kurzer Zeit ermöglichen. Das wird unsere Kenntnisse über Gesundheit und gesund sein sowie über die Entstehung, Prävention und Heilung von Krankheiten vollkommen verändern. Gleichzeitig wird sich die Art und Weise, wie Medizin praktiziert wird, fundamental verändern. Das Selbstverständnis nahezu aller Akteure wird sich rasch weiterentwickeln müssen. Das Gesundheitssystem wird in allen Bereichen umgebaut und teilweise neu erfunden werden. Digitale Transformation, Personalisierung und Prävention sind die Treiber der neuen Medizin. Deutschland darf den Anschluss nicht verpassen. Im Vergleich mit anderen Ländern ist das deutsche Gesundheitswesen in vielen Punkten bedrohlich rückständig und fragmentiert. Um die Medizin und das Gesundheitswesen in Deutschland langfristig zukunftsfest zu machen, bedarf es vieler Anstrengungen – vor allem aber Offenheit gegenüber Veränderungen, sowie einen regulatorischen Rahmen, der ermöglicht, dass die medizinischen und digitalen Innovationen beim Patienten ankommen. Die Zukunft der Medizin beschreibt Entwicklungen und Technologien, die die Medizin und das Gesundheitswesen im 21. Jahrhundert prägen werden. Das Buch informiert über die zum Teil dramatischen, disruptiven Innovationen in der Forschung, die durch Big Data, Künstliche Intelligenz und Robotik möglich werden. Die Autoren sind führende Vordenker ihres Fachs und beschreiben aus langjähriger Erfahrung im In- und Ausland zukünftige Entwicklungen, die jetzt bereits greifbar sind.


Digitale Gesundheit In Europa

Digitale Gesundheit in Europa PDF Book Details:
Author: Jens Baas
Publisher: MWV
ISBN: 395466531X
Size: 48.85 MB
Format: PDF, ePub, Docs
Category : Medical
Languages : de
Pages : 343
View: 7313

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Digitale Gesundheit In Europa PDF

by Jens Baas, Digitale Gesundheit In Europa Books available in PDF, EPUB, Mobi Format. Download Digitale Gesundheit In Europa books, Dieses Buch soll einen Beitrag dazu leisten, die Versorgung der Patienten zu verbessern. Denn das ist der Sinn der Digitalisierung im Gesundheitswesen – und die deutsche Ratspräsidentschaft in der Europäischen Union (EU) bietet die Chance, hier einen großen Schritt nach vorn zu gehen. Derzeit zeigt uns die Covid-19-Pandemie sehr deutlich, wie wichtig die Digitalisierung im Gesundheitswesen ist. Sie verbessert ganz konkret die Versorgung, wenn es zum Beispiel um eine Übersicht der Auslastung von Intensivbetten mit Beatmungsmöglichkeit geht. Andererseits stellen wir uns an vielen Stellen auch die Frage, warum bestimmte Dinge noch nicht digital möglich sind. Die Krise führt uns außerdem vor Augen, dass in einer vernetzten und globalen Welt ein einheitlich europäisches Denken und Handeln für alle von Vorteil ist.


Die Unsterblichkeit Der Henrietta Lacks

Die Unsterblichkeit der Henrietta Lacks PDF Book Details:
Author: Rebecca Skloot
Publisher: Irisiana
ISBN: 3641051754
Size: 13.93 MB
Format: PDF, ePub
Category : Biography & Autobiography
Languages : de
Pages : 512
View: 7449

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Die Unsterblichkeit Der Henrietta Lacks PDF

by Rebecca Skloot, Die Unsterblichkeit Der Henrietta Lacks Books available in PDF, EPUB, Mobi Format. Download Die Unsterblichkeit Der Henrietta Lacks books, Dieses Buch betrifft uns alle Sie waren notwendig, um Fortschritte gegen Krebs und AIDS zu erzielen. Klonen und Genforschung wäre ohne sie nicht möglich gewesen. Kurz: Die größten Erfolge der Medizin der letzten Jahrzehnte basieren auf der Entdeckung der HeLa-Zellen. Hinter dem Kürzel verbirgt sich eine Frau namens Henrietta Lacks. Die Afroamerikanerin aus ärmlichen Verhältnissen starb 1951 jung an Gebärmutterhalskrebs. Zuvor wurden ihr ohne ihr Wissen Zellproben entnommen, die sich überraschenderweise vermehrten. Damit war der entscheidende Durchbruch in der Zellkulturforschung geschafft. Die prämierte Wissenschaftsjournalistin Rebecca Skloot stellt in ihrem brillant verfassten Buch wichtige Jahrzehnte der Medizingeschichte vor und wirft dabei immer wieder ethische Fragen auf. Sie erzählt die tragische Familiengeschichte der Lacks’, die von Rassismus und mangelnden Bildungschancen geprägt ist. Ihr Buch ist eine gekonnte Mischung aus Biografie, Medizingeschichte, Debattenbuch und beachtlichem Enthüllungsjournalismus.


Digital Transformation Of Identity In The Age Of Artificial Intelligence

Digital Transformation of Identity in the Age of Artificial Intelligence PDF Book Details:
Author: Kazuhiko Shibuya
Publisher: Springer Nature
ISBN: 9811522480
Size: 59.66 MB
Format: PDF, Kindle
Category : Mathematics
Languages : en
Pages : 286
View: 7472

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Digital Transformation Of Identity In The Age Of Artificial Intelligence PDF

by Kazuhiko Shibuya, Digital Transformation Of Identity In The Age Of Artificial Intelligence Books available in PDF, EPUB, Mobi Format. Download Digital Transformation Of Identity In The Age Of Artificial Intelligence books, This book examines the digital transformation of identity in the age of artificial intelligence. It articulates the nature of identity of human beings, based on cutting-edge knowledge in the field of AI and big-data sciences, and discusses identity by drawing on comprehensive investigations in digital social sciences and exploring wider disciplines related to philosophy, ethics, sociology, STS, computer sciences, engineering, and medical sciences. Reviewing contemporary conditions proliferated by advanced technological trends and unveiling social mechanisms of human identity, this book appeals to undergraduate and graduate students as well as academic researchers.


Digital Afterlife

Digital Afterlife PDF Book Details:
Author: Maggi Savin-Baden
Publisher: CRC Press
ISBN: 1000026620
Size: 12.89 MB
Format: PDF
Category : Computers
Languages : en
Pages : 214
View: 3540

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Digital Afterlife PDF

by Maggi Savin-Baden, Digital Afterlife Books available in PDF, EPUB, Mobi Format. Download Digital Afterlife books, Despite the range of studies into grief and mourning in relation to the digital, research to date largely focuses on the cultural practices and meanings that are played out in and through digital environments. Digital Afterlife brings together experts from diverse fields who share an interest in Digital Afterlife and the wide-ranging issues that relate to this. The book covers a variety of matters that have been neglected in other research texts, for example: The legal, ethical, and philosophical conundrums of Digital Afterlife The ways digital media are currently being used to expand the possibilities of commemorating the dead and managing the grief of those left behind Our lives are shaped by and shape the creation of our Digital Afterlife as the digital has become a taken for granted aspect of human experience. This book will be of interest to undergraduates from computing, theology, business studies, philosophy, psychology, sociology, and education from all types of institutions. Secondary audiences include researchers and postgraduate researchers with an interest in the digital. At a practical level, the cost of data storage and changing data storage systems mitigate the likelihood of our digital presence existing in perpetuity. Whether we create accidental or intentional digital memories, this has psychological consequences for ourselves and for society. Essentially, the foreverness of forever is in question. Maggi Savin-Baden is Professor of Higher Education Research at the University of Worcester. She has a strong publication record of over 50 research publications and 17 books. Victoria Mason-Robbie is a Chartered Psychologist and an experienced lecturer having worked in the Higher Education sector for over 15 years. Her current research focuses on evaluating web-based avatars, pedagogical agents, and virtual humans.


The 2018 Yearbook Of The Digital Ethics Lab

The 2018 Yearbook of the Digital Ethics Lab PDF Book Details:
Author: Carl Öhman
Publisher: Springer Nature
ISBN: 3030171523
Size: 12.58 MB
Format: PDF, ePub, Docs
Category : Philosophy
Languages : en
Pages : 224
View: 6291

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The 2018 Yearbook Of The Digital Ethics Lab PDF

by Carl Öhman, The 2018 Yearbook Of The Digital Ethics Lab Books available in PDF, EPUB, Mobi Format. Download The 2018 Yearbook Of The Digital Ethics Lab books, This book explores a wide range of topics in digital ethics. It features 11 chapters that analyze the opportunities and the ethical challenges posed by digital innovation, delineate new approaches to solve them, and offer concrete guidance to harness the potential for good of digital technologies. The contributors are all members of the Digital Ethics Lab (the DELab), a research environment that draws on a wide range of academic traditions. The chapters highlight the inherently multidisciplinary nature of the subject, which cannot be separated from the epistemological foundations of the technologies themselves or the political implications of the requisite reforms. Coverage illustrates the importance of expert knowledge in the project of designing new reforms and political systems for the digital age. The contributions also show how this task requires a deep self-understanding of who we are as individuals and as a species. The questions raised here have ancient -- perhaps even timeless -- roots. The phenomena they address may be new. But, the contributors examine the fundamental concepts that undergird them: good and evil, justice and truth. Indeed, every epoch has its great challenges. The role of philosophy must be to redefine the meaning of these concepts in light of the particular challenges it faces. This is true also for the digital age. This book takes an important step towards redefining and re-implementing fundamental ethical concepts to this new era.


Zwischen Ungleichheit Und Gerechtigkeit

Zwischen Ungleichheit und Gerechtigkeit PDF Book Details:
Author: Frank Mathwig
Publisher: Theologischer Verlag Zürich
ISBN: 3290182134
Size: 46.93 MB
Format: PDF, Kindle
Category : Religion
Languages : de
Pages : 124
View: 7158

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Zwischen Ungleichheit Und Gerechtigkeit PDF

by Frank Mathwig, Zwischen Ungleichheit Und Gerechtigkeit Books available in PDF, EPUB, Mobi Format. Download Zwischen Ungleichheit Und Gerechtigkeit books, Gerechtigkeit ist ein zentraler Wert in Politik und Gesellschaft. Trotzdem ist sie im Hinblick auf ihren Gehalt und ihre Reichweite höchst umstritten. Die Autorinnen und Autoren diskutieren grundlegend ethische und konkret praktische Fragen der Gerechtigkeit in Bezug auf Gesundheitswesen, Medizin, Pflegebeziehungen und Biotechnologien. Wie sieht eine gerechte Verteilung knapper Ressourcen in der Gesundheitsversorgung aus? Was sind die ethischen Grundlagen und worauf zielt eine gerechte Verteilung von Gesundheitsleistungen? Welche besonderen Problemstellungen zur Frage der Gerechtigkeit ergeben sich im Verlauf eines menschlichen Lebens? In welchem Verhältnis stehen Gerechtigkeitsfragen zu anderen Themen der Medizin-, Bio- und Pflegeethik?